Medicine and me: ME and CFS - Hearing the patient's voice
Saturday 11 July 2009
Venue: The Royal Society of Medicine, 1 Wimpole Street, London, W1G 0AE
organised by the Royal Society of Medicine and The ME Association, Action for ME, AYME, The 25% ME Group and The Tymes Trust
'Medicine and Me' conferences, initiated and developed by the Royal Society of Medicine, are specifically designed for patients. These meetings bring together patients, their families, carers, advocates, patient support groups, clinicians and researchers to discuss care and research issues in a particular condition.
This 'Medicine and Me: ME and CFS' conference is organised jointly by the Royal Society of Medicine, The ME Association, Action for ME, AYME, The 25% ME Group and The Tymes Trust.
'Medicine and Me' meetings aim to provide a forum in which patients' concerns about their illness are given top priority. The meetings provide an opportunity for patients and their families to share experiences, to hear about the latest research and treatment, to discuss treatment choices and access to treatment, and to question the experts on a wide range of issues.
This meeting will focus on the difficulties and delays in diagnosis, ME and CFS in children and adolescents, the existing range of treatments, and the latest research and its impact on the development of new, disease-modifying treatments.
The audience at 'Medicine and Me meetings typically comprises patients, their families, carers and advocates, representing at least 70% of those present; and clinicians and researchers, representing not more than 30%. Clinicians will include doctors, specialist nurses and all other health professionals involved in the treatment and care of patients with ME and CFS.
This meeting will be suitable for all those affected by ME and CFS
Places are still available for this meeting however we are no longer accepting registrations via the website. If you would like to attend, please contact Sinem Gocmen directly on 0207 290 3856.
Registration Details:
Fellow: £50
Associate: £30
Trainee - Fellow: £30
Retired Fellow: £30
Student Members: £20
Non-Fellow: £70
Allied Health Professional: £35
Nurse: £35
Trainee - Non-Fellow: £35
Student: £25
Patient: £10
Carer: £10
CPD: 3 credits
12.15 pm |
Registration and coffee |
1.00 pm |
Welcome address |
|
Dr David Misselbrook, Dean, RSM & Ms Jane Colby, Executive Director, The Young ME Sufferers Trust |
|
|
Session One |
|
| Chair: Dr Charles Shepherd, ME Association | |
1.10 pm |
Diagnosis: the patient's perspective |
| Mr Jez Harding, Jez Harding Consulting Ltd, London | |
1.25 pm |
Patient videos |
1.35 pm |
A rational, efficient and practical approach to diagnosis |
| Dr Abhijit Chaudhuri, Essex Centre for Neurosciences | |
1.50 pm |
Questions |
1.55 pm |
ME in children and adolescents: the patient's perspective |
| Miss Shannen Dabson | |
2.10 pm |
Addressing the educational impact of ME |
| Mr Hardip Begol, Department for Children, Schools and Families, London | |
2.25 pm |
Questions |
2.30 pm |
Treatment: the patient's perspective |
| Ms Catriona Coutier | |
2.50 pm |
Treatment- evidence based and pragmatic approaches |
| Professor Anthony Pinching, Peninsula Medical School | |
3.05 pm |
Questions |
3.10 pm |
Tea break |
|
Session Two |
|
| Chair: Sir Peter Spencer, Action for ME | |
3.35 pm |
Research: what do patients want and why isn't it happening? |
| Dr Neil Abbot, ME Research UK and University of Dundee | |
3.50 pm |
ME: a research orphan for too long |
| Professor Stephen Holgate, University of Southampton | |
|
Session Three |
|
| Chair: David Misselbrook, Dean, RSM | |
4.05 pm |
Panel discussion |
| All speakers and Dr Nigel Speight, adviser to ME Association and Professionals Referral Panel, The Young ME Sufferers Trust | |
4.55 pm |
Closing remarks |
|
Mrs Mary-Jane Willows, Association for Young People with ME Mrs Doris Jones, The 25% ME Group Dr David Misselbrook, Dean RSM |
|
5.00 pm |
Close of meeting |